Sickle Cell Disease Association of America
Philadelphia/Delaware Valley Chapter
5300 Wynnefield Avenue, 2nd Floor   Philadelphia, Pennsylvania 19131
tel: 215-471-8686  fax: 215-471-7441  email: scdaa.pdvc@verizon.net
SCDAA/PDVC


The Sickle Cell Disease Association of America, 
Philadelphia / Delaware Valley Chapter (SCDAA/PDVC)
is a non-profit  psychosocial, social service and advocacy
agency established in 1982. SCDAA/PDVC provides
resources and assistance to children, adolescents, and
families affected by sickle cell disease and sickle cell trait in Philadelphia and the counties of Berks, Bucks, Carbon, Chester, Delaware, Lackawanna, Lancaster, Lehigh, Luzerne, Monroe, Montgomery, Northampton, Pike, Schuylkill, Susquehanna, Wayne and Wyoming.
A secure credit card donation can also be made at firstgiving.com:
www.firstgiving.com/sicklecellphiladelphia
OUR MISSION

The mission of SCDAA/PDVC is to serve as a vehicle and resource center for the psychosocial and social service needs of children, adolescents, adults and families affected by sickle cell disease. SCDAA/PDVC seeks to develop, manage and allocate resources in partnership with hospitals, charitable organizations community based organizations and social service agencies.

Congratulations to Kiarra Roseburgh!!!
SCDAA’S National Child Ambassador

The Philadelphia/Delaware Valley Chapter of the Sickle Cell Disease Association of America, Inc. is so very proud that Kiarra Roseburgh, will serve as SCDAA’s new National Child Ambassador.

As SCDAA poster child, Kiarra will serve as goodwill ambassador and assist in public education campaigns. A nationwide search takes place biennially to find the next child who will give voice to millions of children who suffer from sickle cell disease (SCD). This year, a large number of applications were submitted and Kiarra rose above nine finalists in the final phase of competition.

Kiarra Roseburgh, a Pennsylvania native is a talented and active eight-year-old third grader who was born with type SC SCD. She attends and maintains good grades at Watson Comly School. She loves to play with her dolls, make new friends, and draw. Kiarra is an active member of the Joyful Noize Youth Choir, Dance Ministry and an honorary member of the Gems Missionary Team at Calvary Christian Church. She is also the 2017 second runner-up in the Diamonds & Pearls Pageant and was presented the “Women of Worth-Girl Power” Award for being a SCD Child Advocate at the 2017 Soiree in the Cities.

“Being the next National Child Ambassador will provide Kiarra with a ‘microphone’ that she can use to raise her voice to spread awareness and to ask for donations for this good cause,” says Kiarra’s grandmother, Tanique Mitchell. “She can meet kids from around the world that have sickle cell disease and tell their stories and share their needs. This is very important to her, as she wants to inspire everyone to be just as faithful and strong as she is.”

Kiarra receives her specialized care from the Children’s Hematology Department at St. Christopher’s Hospital in Philadelphia. She has been living with the pain and complications of sickle cell disease all of her life, and managing her disease has become a routine part of her family’s life, since her first pain crisis at the age of one. Kiarra’s platform, “KickingItWithKiarra,” has brought together a small but supportive and committed team of family members and friends to join her efforts to increase awareness about SCD. “KickingItWithKiarra” started as just her team name for the annual SCDAA-PDVC-Walter E. Brandon Sickle Cell Disease Walk/Run. Now, her platform has grown and expanded beyond just her family to include her church, school friends, her parents’ co-workers, and lots of social media friends, which has awarded her the #1 fundraiser for three years in a row for the annual Walk.

Kiarra is also an advocate for herself and others, raising awareness during Sickle Cell Awareness Month in September, Sickle Cell Advocacy Day in May, and World Sickle Cell Day in June. On World Sickle Cell Day, Kiarra honored children affected by SCD and the warriors that have passed by lighting two candles and naming the individuals. She also started a pen-pal program for children living with SCD and has written to and become friends with young children as far away as the United Kingdom. She has hosted a Zumba-thon to raise funds, made visits to the Pennsylvania State Capitol, hosted toy drives for the past two years and donated holiday toys for the Hematology Department at St. Christopher’s Hospital.

Kiarra’s dream is to inspire others in the SCD journey and to increase support in the fight against this disease. She has amazing energy and a strong commitment to this cause, and has endured and accomplished much for her young age.