SICKLE CELL DISEASE ASSOCIATION
Philadelphia/Delaware Valley Chapter
5300 Wynnefield Avenue, 2nd Floor   Philadelphia, Pennsylvania 19131
tel: 215-471-8686  fax: 215-471-7441  email: scdaa.pdvc@verizon.net
SCDAA/PDVC

Stories of Caring
In performing our mission of providing resources and assistance to children, adolescents and families affected by sickle cell disease and sickle cell trait, we often encounter remarkable individuals whose talent, drive and desire to help others propel them to high levels of performance in spite of the disease.

Nazir Alston
Nazir Alston is an inspiring young adult who uses his talent and life experience to provide insightful details and sound direction about living with Sickle Cell Disease.

Nazir is wise beyond his years and we encourage you to read about his creative endeavors and outstanding achievements by clicking the link below.
Isaiah Kai Huff

 

Isaiah is the youngest of his siblings; he has 2 brothers 18 and 20 and 1 sister 21.  Isaiah was diagnosed with Sickle Cell shortly after his birth and it has been a long haul ever since.  Isaiah has been hospitalized over 20 times in his 10 years of life.  I have been there every step of the way and by his side whether he spent 2 days or 5 in the hospital.  The winter months seem to affect Isaiah the most. Despite his problems with Sickle Cell, Isaiah has been a wonderful young man; everyone who comes in contact with him love and adore him.  We have hosted several Annual Sickle Cell Blood drives in honor of Isaiah; his youth group at church took up a collection and donated toys to the Sickle Cell Department of St. Christopher’s Hospital.  Isaiah attends a school with predominantly White children. Through the efforts of Isaiah and I, we made his teacher, nurse, principal and staff members more aware about Sickle Cell and what to expect from a child who battles this disease.  Isaiah is very knowledgeable about his condition and will speak of how it makes him feel when he goes through his crisis.  He often questions, why God made him like that, and I tell him all the time, because he is special and he is going to grow up helping other people who also have the disease.  I tell him, you are going through this so that you can be stronger and able to help.

Isaiah has written a book, "Captain I Visits The Hospital " It is about a boy visiting sick children in the hospital and making it adventurous. His book is available on Amazon:  https://www.amazon.com/dp/1640502432/