SERVICES / PROGRAMS
Case Management – Ensure that individuals with sickle cell disease have access to a full array of medical, social, educational and community services and resources.
Counseling – Certified single gene genetic counselors and educators provide counseling for children, adolescents, adults and families affected by sickle cell disease and sickle cell trait.
Advocacy – Support, promote and encourage self-sufficiency in individuals and families affected by sickle cell disease.
Career/Vocational Counseling – Assist individuals with sickle cell disease in identifying and planning appropriate career and/or vocational goals.
Transportation – Provide free transportation for medical appointments to children with sickle cell disease and their parents.
Community Outreach and Education – Programs are designed to raise awareness about sickle cell disease and sickle cell trait through educational seminars, health fairs, workshops, in-service trainings, meetings and presentations.
LeRoi Simmons Sickle Cell Disease Scholarship
Fund – In accordance with established criteria, scholarship
funds are provided only to persons with sickle cell disease.
Newborn Screening Follow-Up Program - Assists local medical centers with locating newborns with sickle cell disease who have not reported for follow-up medical appointments. Genetic counseling is also provided to families of newborns who receive a preliminary diagnosis of sickle cell trait.
Support Groups – Provide periodic forums for adolescents, young adults, adults and couples with sickle cell disease to share concerns, exchange ideas and engage in community events and activities.
Be An African–American Hero – Cooperative Sickle Cell Disease Blood Donor Program through collaborative partnerships with the American Red Cross, Blood Services - Penn-Jersey Region, Children’s Hospital of Philadelphia’s Sickle Cell Center, St. Christopher’s Hospital for Children and the Marian Anderson Sickle Cell Center. These programs help to raise awareness about the critical need for African-Americans donors to support regular blood transfusion therapy for children with sickle cell disease.
Sickle Cell Sabbath – Is a Spiritual outreach program in partnerships with the faith-based community. The goal is to increase awareness and provide education about sickle cell disease and sickle cell trait.
Collaborative partnerships with community cultural agencies that provide
supportive services and resources to immigrant populations affected by sickle
cell disease and sickle cell trait.
Cell Awareness Month –
The month of September is recognized as Sickle Cell Awareness Month. The Sickle Cell Disease Association of
America, Philadelphia/Delaware Valley Chapter sponsors various events to raise
awareness about sickle cell disease, sickle cell trait and the importance of
testing. Learn More