Philadelphia/Delaware Valley Chapter
5300 Wynnefield Avenue, 2nd Floor   Philadelphia, Pennsylvania 19131
tel: 215-471-8686  fax: 215-471-7441  email:
Kiarra Roseburgh Is our National Ambassador
Isaiah Huff is our Philadelphia/Delaware Valley Poster Child

Our National and Local Poster Children are exceptional young people. They are very aware of the effects of sickle cell disease and both want to continue and grow their efforts to help others suffering with the disease. They are truly an inspiration!

The Philadelphia/Delaware Valley Chapter of the Sickle Cell Disease Association of America, Inc. is so very proud that Kiarra Roseburgh, serves as SCDAA’s
National Child Ambassador.

As SCDAA poster child, Kiarra serves as goodwill ambassador and assists in public education campaigns. A nationwide search takes place biennially to find the next child who will give voice to millions of children who suffer from sickle cell disease (SCD). This year, a large number of applications were submitted and Kiarra rose above nine finalists in the final phase of competition.

Kiarra Roseburgh, a Pennsylvania native is a talented and active eight-year-old third grader who was born with type SC SCD. She attends and maintains good grades at Watson Comly School. She loves to play with her dolls, make new friends, and draw. Kiarra is an active member of the Joyful Noize Youth Choir, Dance Ministry and an honorary member of the Gems Missionary Team at Calvary Christian Church. She is also the 2017 second runner-up in the Diamonds & Pearls Pageant and was presented the “Women of Worth-Girl Power” Award for being a SCD Child Advocate at the 2017 Soiree in the Cities.

“Being the National Child Ambassador provides Kiarra with a ‘microphone’ that she can use to raise her voice to spread awareness and to ask for donations for this good cause,” says Kiarra’s grandmother, Tanique Mitchell. “She can meet kids from around the world that have sickle cell disease and tell their stories and share their needs. This is very important to her, as she wants to inspire everyone to be just as faithful and strong as she is.”

Kiarra receives her specialized care from the Children’s Hematology Department at St. Christopher’s Hospital in Philadelphia. She has been living with the pain and complications of sickle cell disease all of her life, and managing her disease has become a routine part of her family’s life, since her first pain crisis at the age of one. Kiarra’s platform, “KickingItWithKiarra,” has brought together a small but supportive and committed team of family members and friends to join her efforts to increase awareness about SCD. “KickingItWithKiarra” started as just her team name for the annual SCDAA-PDVC-Walter E. Brandon Sickle Cell Disease Walk/Run. Now, her platform has grown and expanded beyond just her family to include her church, school friends, her parents’ co-workers, and lots of social media friends, which has awarded her the #1 fundraiser for three years in a row for the annual Walk.

Kiarra is also an advocate for herself and others, raising awareness during Sickle Cell Awareness Month in September, Sickle Cell Advocacy Day in May, and World Sickle Cell Day in June. On World Sickle Cell Day, Kiarra honored children affected by SCD and the warriors that have passed by lighting two candles and naming the individuals. She also started a pen-pal program for children living with SCD and has written to and become friends with young children as far away as the United Kingdom. She has hosted a Zumba-thon to raise funds, made visits to the Pennsylvania State Capitol, hosted toy drives for the past two years and donated holiday toys for the Hematology Department at St. Christopher’s Hospital.

Kiarra’s dream is to inspire others in the SCD journey and to increase support in the fight against this disease. She has amazing energy and a strong commitment to this cause, and has endured and accomplished much for her young age

The Philadelphia/Delaware Valley Chapter of the Sickle Cell Disease Association of America, Inc. is so very proud that Isaiah Huff serves as Poster Child for SCDAA, Philadelphia/Delaware Valley Chapter.

Isaiah is the youngest of his siblings; he has 2 brothers 18 and 20 and 1 sister 21.  Isaiah was diagnosed with Sickle Cell shortly after his birth and it has been a long haul ever since.  Isaiah has been hospitalized over 20 times in his 10 years of life.  I have been there every step of the way and by his side whether he spent 2 days or 5 in the hospital.  The winter months seem to affect Isaiah the most. Despite his problems with Sickle Cell, Isaiah has been a wonderful young man; everyone who comes in contact with him love and adore him.  We have hosted several Annual Sickle Cell Blood drives in honor of Isaiah; his youth group at church took up a collection and donated toys to the Sickle Cell Department of St. Christopher’s Hospital.  He continues to hold special events to benefit children suffering with sickle cell disease, locally and across the globe in Nigeria.Isaiah attends a school with predominantly White children. Through the efforts of Isaiah and I, we made his teacher, nurse, principal and staff members more aware about Sickle Cell Disease and what to expect from a child who battles this disease.  Isaiah is very knowledgeable about his condition and will speak of how it makes him feel when he goes through his crisis.  He often questions, why God made him like that, and I tell him all the time, because he is special and he is going to grow up helping other people who also have the disease.  I tell him, "you are going through this so that you can be stronger and able to help."

Isaiah has written a book, "Captain I Visits The Hospital " It is about a boy visiting sick children in the hospital and making it adventurous. His book is available on Amazon: