Case Management – Ensures all individuals with sickle cell disease access to a full array of medical; social; educational; community services and resources.
Counseling – Certified single gene genetic counselors and educators provide counseling for children, adolescents, adults and families affected by sickle cell disease and sickle cell trait.
Advocacy – Supports, promotes and encourages self-sufficiency in individuals and families affected by sickle cell disease.
Career/Vocational Counseling – Assists individuals with sickle cell disease in identifying and planning appropriate career and/or vocational goals.
Transportation – Provides free transportation for medical appointments to children with sickle cell disease and their parents.
Community Outreach and Education – Raises awareness about sickle cell disease and sickle cell trait through educational seminars; health fairs; workshops; in-service trainings; meetings and presentations.
Newborn Screening Follow-Up Program- Assists local medical centers with locating newborns with sickle cell disease that have been lost to follow-up. Genetic counseling is also provided to families of newborns who receive a preliminary diagnosis of sickle cell trait.
Support Groups – Provide monthly forums for adolescents; young adults; adults and couples with sickle cell disease to share concerns, exchange ideas and engage in community events and activities.
Be An African–American Hero – Cooperative Sickle Cell Disease Blood Donor Program-Collaborative partnerships with the American Red Cross, Blood Services, Penn-Jersey Region; Children’s Hospital of Philadelphia, Sickle Cell Center and St. Christopher’s Hospital for Children, Marian Anderson Sickle Cell Center to raise awareness about the critical need for African-American donors to donate blood for children with sickle cell disease, who require blood transfusion therapy support.
Sickle Cell Sabbath – Spiritual outreach program that aims to educate and increase awareness about sickle cell disease and sickle cell trait through partnerships with the faith-based community.
Multicultural Initiative – Collaborative partnerships with community cultural agencies that provide supportive services and resources to emerging immigrant populations affected by sickle cell disease and sickle cell trait.
Sickle Cell Awareness Month – September is recognized as Sickle Cell Awareness Month and the Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter sponsors the Annual Sickle Cell Seminar and the Walter E. Brandon Sickle Cell Walkathon to raise public awareness about sickle cell disease, sickle cell trait and the importance of testing.