Sickle Cell Disease Association of America
Philadelphia/Delaware Valley Chapter
5070 Parkside Avenue - Suite 1404
Philadelphia, Pennsylvania 19131
215-471-8686 tel  215-471-7441 fax
scdaa.pdvc@verizon.net

"Get Connected"

"Get Connected" is the 1st National Patient Powered Registry of the Sickle Cell Disease Association of America. Your input through "Get Connected" will help to identify critical needs. But most importantly, your voice can inform and support vital research and lead to the development of much needed care improvement guidelines. 
SCDAA/PDVC has a unique link for you to donate while shopping amazon.com

Your Get Connect Representative:

Philadelphia/Delaware Valley:
Shakirah Stephens
215-471-8686
sstephens.scdaa@verizon.net

Delaware: 
Donna Monroe
302-383-8636
msdpm1013@gmail.com
Maryland:
Nikia Vaughan
443-248-8203
nvaughan@marylandsicklecelldosease.org
Your Get Connected Representative:

Philadelphia/Delaware Valley
Shakirah Stephens
215-471-8686
sstephens.scdaa@verizon.net
Delaware
Donna Monroe
302-383-8636
msdpm1013@gmail.com
Maryland
Nikia Vaughan
443-248-8203
nvaughan@marylandsicklecelldisease.org

Central Pennsylvania
Danita Davis
717-329-3635
dgdavis2211@gmail.com

Your Patient-Powered Registry 

The Sickle Cell "Get Connected" Registry 


"Get Connected" registry is free and confidential. 

HOW TO REGISTER
:
Click on the link: www.GetConnectedscd.org  select Register then follow the prompts. Be certain to respond to the question about your local CBO affiliate, select: SCDAA - Philadelphia/Delaware Valley Chapter.

Once registered, within minutes you will receive an approval email with access information for completing your profile.  Remember to check your email for your approval link.

Your patient-powered registry is HIPPA approved and follows all Confidentiality laws.  www.GetConnectedscd.org