Sickle Cell Disease Association of America, Philadelphia/Delaware Valley
Chapter (SCDAA/PDVC), formerly known as The Sickle Cell Genetic Disease Council
of Southeastern Pennsylvania, began as an adult patient therapy group,
comprised of thirty members that met monthly at Pennsylvania Hospital from
1977-1982. The purpose of the group at that time was to share their
concerns, offer support and plan various activities. However in 1982
federal funding for the Sickle Cell Program at Pennsylvania Hospital was
discontinued, leaving sickle cell patients without any support. The hospital
social worker then encouraged the patient group to consider establishing their
own agency with a focus on providing psychosocial and social
services. This was an important step toward addressing other critical patients
issues because the hospital focused primarily on meeting their medical needs.
July 2, 1982, the Sickle Cell Genetic Disease Council of Southeastern
Pennsylvania became incorporated as a 501C (3) non-profit advocacy
agency. The two co-founders were Rev. Walter E. Brandon and Willie J.
Hubert. The agency was established to provide comprehensive psychosocial
services to children, adolescents and adults who were affected by sickle cell
disease (SCD) and sickle cell trait (SCT). Over the years, they
collaborated with local pediatric and adult hospitals to establish various
programs to meet the needs of individuals in the sickle cell community.
1995, the agency became a chapter member of the Sickle Cell Disease Association
of America, and officially changed the name to the Sickle Cell Disease
Association of America, Philadelphia/Delaware Valley Chapter. Willie J.
Hubert, co-founder of the agency, passed away in 1996 after giving great
service, love and compassion to individuals with SCD. On April 2, 1998,
Rev. Brandon the other co-founder also passed away due to complications of
sickle cell disease. Because of Rev. Brandon’s life-long mission and
commitment to advocacy in the sickle cell community, the Board of Directors
named the agency’s first annual Walk-A-Thon in his memory.
SCDAA/PDVC has enjoyed a long history with
Rev. Walter E. Brandon serving as the first Executive Director and Board
President. Since 1998, Stanley A. Simpkins, BS, has served and continues to
serve as the Executive Director, overseeing a staff of 6 individuals serving
approximately 2,000 clients throughout the Philadelphia/Delaware Valley region.
SCDAA/PDVC has effectively served
the sickle cell community since 1982 years by providing resources and
assistance to children, adolescents, adults and families affected by SCD/SCT in
Berks, Bucks, Carbon, Chester, Delaware, Lackawanna, Lancaster, Lehigh,
Luzerne, Monroe, Montgomery, Northampton, Philadelphia, Pike, Schuylkill,
Susquehanna, Wayne and Wyoming counties. The mission of the agency is to
serve as a vehicle and resource center providing psychosocial and social
services to meet the needs of these individuals.
SCDAA/PDVC provides the following
services: case management; counseling; hospital/clinic/home visits; advocacy;
career/vocational assistance; newborn screening follow-up; transportation;
outreach/community and education services and support groups